CRRL Health: Autism Resources for Families
Annotation:An activity schedule is a set of pictures or words that cues a child to follow a sequence of activities. When activity schedules are mastered, children are more self-directed and purposeful in their home, school, and leisure activities-doing puzzles, interacting with classmates, and preparing food with minimal assistance from adults. Based on research performed at the Princeton Child Development Institute.
Annotation:"For Asperkids, home is both their protected lair and their launch pad into a neurotypical world. In this unique book, Jennifer O'Toole provides parents with all the help they need in planning their home environment to encourage their Asperkid superheroes to soar."
Annotation:"Asperger's employment expert Barbara Bissonnette describes exactly what it takes to get hired in the neurotypical workplace. Every aspect of finding employment is covered, from defining strengths and researching occupations, to marketing oneself and projecting confidence and enthusiasm in interviews. Job-hunters are taught how to develop a personal profile of their talents and skills, their ideal work environment, and important work criteria. They are then shown how to set realistic goals and develop an effective job search plan. A wealth of checklists, templates, sample scripts and written communications accompany the text."
Annotation:"Her goal is to balance the child's body, mind, and spirit through proven techniques. Part Two provides a wide variety of exercises, activities, and games that are both fun and effective. Each is designed to reduce hyperactivity, increase and prolong focus, decrease anger, develop fine motor skills, or improve social and verbal skills. All are part of a program created to help these children relate to their environment without fear, anxiety, or discomfort."
Annotation:A nationally recognized autism advocate provides step-by-step instructions to parents raising and advocating for a child with autism, and explains how to safeguard the rights of their special-needs children both in and out of school.
Annotation:"...shows how to get an accurate assessment of your child's strengths and weaknesses so you can develop a plan of action suited to his or her individual learning style, interests, verbal abilities, and social skills."
Annotation:"...There is no simple cure for this multifarious disorder, she writes; instead, an individual program, with a unique array of specific treatments, must be constructed for each child. She gives practical guidance for fashioning such a program, empowering parents to take the lead in their child's treatment. At the same time, she cautions against the proliferating, but questionable, treatments hawked to afflicted families. " Also available as a print book.
Annotation:"Jacqui Jackson has seven children. Luke (author of Freaks, Geeks and Asperger Syndrome) has Asperger Syndrome, Joe has ADHD, and Ben has autism. Life is anything but straightforward, but the chaos of the Jacksons' lives is threaded through with humor and common sense. Full of anecdotes and lively thinking, the book explains vividly what it is like to parent young people with such a range of conditions, and provides a wealth of helpful and creative advice for other parents and carers."
Annotation:The author addresses how to teach students about emotions, abstract thinking skills, acceptable behavior, and communication skills. Includes useful forms for tracking development.
Annotation:"Developed through years of experience, these strategically written stories explain social situations in a way children with autism understand, while teaching the social skills children need to be successful at home, at school, and in the community."
Annotation:Written by activist, caring mothers of autistic children, the OASIS Guide gives useful strategies for working with children at home, in the community, and at school and outlines different educational programs. The authors manage the OASIS Web site, Online Asperger Syndrome Information and Support.
Annotation:"From leading experts in the field, the book is packed with practical ideas for helping children relate more comfortably to peers,learn the rules of appropriate behavior, and participate more fully in school and family life. It also explains what scientists currently know about autistic spectrum disorders and how they are diagnosed and treated."
Annotation:Visual communication strategies can provide the critical language bridge for autistic students who are unable to use spoken language effectively. This book discusses why such strategies can help and how to get the most out of them.
Annotation:"...not just a collection of play ideas; it shows how to break down activities into manageable stages, and looks at ways to gain a child's attention and motivation and to build on small achievements. Each chapter covers a collection of ideas around a theme, including music, art, physical activities, playing outdoors, puzzles, turn-taking and using existing toys to create play sequences. There are also chapters on introducing reading and making the most of television. This updated second edition contains an extensive chapter on how to use the computer, the internet and the digital camera to find and make resources and activities, and suggests many suitable websites to help parents through the internet maze. The ideas are useful both for toddlers and primary age children who are still struggling with play."
Annotation:"...a book that provides the best and most comprehensive information about recent scientific developments and a splendid practical guide for how they are being implemented and what we are learning in the process. The issues are presented in all of their complexity but translated into language that is clear, direct, and easy to follow." (From the Forward)
Annotation:"...explores the basics of sibling relationships and the complexities that surface in families of children with autism. Chapters cover how to explain autism to siblings, how to get siblings to share their feelings and concerns, how to master the family balancing act, and how to foster play between siblings. New chapters have been added concerning what siblings actually believe or understand about autism at different ages and how autism continues to impact adult sibling relationships, careers, and caregiver roles. "
Annotation:"Winner of an iParenting Media Award, this adorable picture book shows readers the challenges that children with autism face and the obstacles they overturn. It is lovingly written in the perspective of three-year-old Foster, who explains his experiences with his older brother, Gavin, who has autism. ... Foster's innocent approach is perfect for teaching others what autism is all about, and for letting other siblings of children with autism know that they are not alone. Angie Healy, the boys' mother, provides a how-to section at the end so families can create their own personalized books."
Annotation:A good place for newcomers: information packages on treatment options, educational rights, pervasive developmental disorder (PDD), challenging behaviors, medications and developing Individualized Education Plans (IEPs).
Annotation:This private organization of parents, physicians and researchers uses its funds to support scientific research on the causes and cures for autism. They are developing a gene bank especially of interest to families who have more than one affected child.
Annotation:"Commonwealth Autism Service is partially funded by the Virginia Legislature to carry out activities in four major goal areas--providing ongoing support to families and professionals, developing regional networks, providing technical assistance, and conducting conferences related to pervasive developmental disorders. Our Board of Directors and Advisory Council include representatives of state agencies, school professionals, medical professionals, parents of children with autism, persons with autism, attorneys, and other relevant stakeholders." Also links to local support groups as well as information on FRAAG, the Fredericksburg Regional Autism Action Group.
Annotation:Located in Fredericksburg, the disAbility Resource Center offers free programs, job counseling, support, a disability primer, peer counseling, and much more.
Annotation:Many resources, such as the daily organizers, songs with graphics, and art activities, are free, but the site also gives ordering information for useful commercial education products such as books, videos, and software. Also has supportive content for parents on legal advocacy and advice from professionals.
Annotation:Has sections devoted to overviews of the condition, diagnosis/symptoms, treatment, alternative therapy, rehabilitation, clinical trials, genetics, research, statistics, and more.
Annotation:Gives some information on treatments and integrative therapies and their relative effectiveness.
Annotation:VARC provides free services for information and referral, individual case consultation, and training and technical assistance. Services may be requested online. Be sure to check out their library of books, videos, and audio materials on autism which may be borrowed by mail.
Annotation:Located in Charlottesville, VIA offers a full-day, twelve-month program for learners aged two and up. They also offer workshops and conferences and provide behavior analysis. Their site includes helpful links for parents.